<\/p>\n
In 1989, The Golden Girls kicked off their fifth season with a two-part episode about Dorothy (Bea Arthur) trying to get a medical professional to take her mysterious fatigue and physical symptoms seriously. The story was based on the real life struggles of Golden Girls’ staff writer Susan Harris. The episodes, titled \u201cSick and Tired\u201d, are sadly reflective of what people with chronic pain and fatigue still experience today. Twenty-six years later, the lines are still being repeated by patients trying to be taken seriously by doctors who dismiss them. All this time later and yet people who know their bodies intimately, and know when something is wrong, continue to be told by doctors that they are just tired, that they need a change in their life, that nothing is wrong with them (despite evidence to the contrary) and that if something is wrong it must be mental.<\/p>\n
As a person who lives with chronic pain and episodic fatigue I watched in amazement as interactions I’ve had with doctors were played out on a show from twenty-six years ago. I watched as lines I\u2019d been fed by impatient doctors were spoken to Dorothy’s character: “you are not sick”, “it is mental”, “there’s nothing wrong with you”, “have you seen a psychiatrist?”. Why, I thought, has the medical profession not come further in their treatment of people with chronic pain? Our symptoms might not fit neatly into a doctor\u2019s checklist, but our pain, fatigue and experiences are real and deserve to be investigated. Why do patients still have to fight so hard to be heard, to have their knowledge of their bodies respected, and to not be treated like people who are wasting doctors’ time?<\/p>\n
How many times have people with chronic pain or fatigue said to themselves, as Dorothy says in the episode \u201cmaybe I am crazy, nobody believes me, maybe I am crazy\u201d. Fortunately Dorothy has friends who tell her \u201cJust because a doctor hasn’t found something doesn’t mean it isn’t there.\u201d When Dorothy finally finds a doctor who believes her she says, as so many of us have said \u201cI can’t tell you what it means to have someone like you believe in me.\u201d Up<\/p>\n
on seeing a new specialist who confirms Chronic Fatigue Syndrome, Dorothy asks why the other doctors didn\u2019t say<\/p>\n
the same, his response is that \u201cthe ones who have heard about it<\/p>\n
sometimes have trouble believing it exists because they can’t see it under their microscopes just yet. Those colleagues of mine tend to blame the victim.\u201d Oh, how I wish I hadn\u2019t completely understood that line. I have, too many times to count, been blamed by medical professionals as the problem, as has the majority of people with chronic fatigue or pain. This goes back to a previous column, in which I state that the medical profession must make room for doctors to be vulnerable, to not know all the answers, to say to a patient that they just don\u2019t know what is happening or what to do; instead, frustrated by their inability to diagnosis something, they blame the patient.<\/p>\n
In the episode Dorothy celebrates with a dinner out with her friends and states \u201cI can’t tell you how relieved I am to be sick, and not sick and crazy. And to know that thousands of others have it too.\u201d What a relief it is to have a name, to know one isn\u2019t crazy, to know others understand and live your experience, to know that fighting for yourself and your health was worth it. This line still resonates today with anyone who has chronic pain or fatigue.<\/p>\n
Dorothy, unlike so many of us, has an opportunity to confront one of the specialists that so rudely dismissed her and her symptoms. She gets to say what so many of us wish we had the chance to say \u201cI came to you sick and scared and you dismissed me. You didn’t have the answer and instead of saying I don’t know, you dismissed me. You made me feel like a fool, a neurotic, a waste of your time. No one deserves that kind of treatment.\u00a0They need to be heard. They need caring. They need compassion.\u201d<\/p>\n
I hope that in twenty-six years, someone with chronic pain or fatigue, watching these two episodes, won\u2019t feel the same sense of recognition as I did. I hope that patients continue to speak out in forums, on blogs, in conferences, wherever we can, to ensure that the medical professionals understand that dismissing us, ignoring our symptoms, and making us feel crazy needs to stop! The medical professionals don\u2019t need to have all the answers, although that would be nice, but they do need to have a basic level of respect for patients, their experiences, and their pain and\/or fatigue. We need to work together to find answers. And hopefully one day the two part episode \u201cSick and Tired\u201d will be a relic of long forgotten days.<\/p>\n
\u201cSick and Tired\u201d, The Golden Girls Episode 1: https:\/\/www.youtube.com\/watch?v=3zJKah1rPis<\/a> In 1989, The Golden Girls kicked off their fifth season with a two-part episode about Dorothy (Bea Arthur) trying to get a medical professional to take her mysterious fatigue and physical symptoms seriously. The story was based on the real life struggles of Golden Girls’ staff writer Susan Harris. The episodes, titled \u201cSick and\u2026 Read More »<\/a><\/span><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"spay_email":"","footnotes":""},"categories":[3,1],"tags":[],"class_list":["post-385","post","type-post","status-publish","format-standard","hentry","category-chronic-pain","category-disability"],"jetpack_featured_media_url":"","jetpack_shortlink":"https:\/\/wp.me\/p4glPx-6d","_links":{"self":[{"href":"https:\/\/canbc.org\/blog\/wp-json\/wp\/v2\/posts\/385","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/canbc.org\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/canbc.org\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/canbc.org\/blog\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/canbc.org\/blog\/wp-json\/wp\/v2\/comments?post=385"}],"version-history":[{"count":7,"href":"https:\/\/canbc.org\/blog\/wp-json\/wp\/v2\/posts\/385\/revisions"}],"predecessor-version":[{"id":510,"href":"https:\/\/canbc.org\/blog\/wp-json\/wp\/v2\/posts\/385\/revisions\/510"}],"wp:attachment":[{"href":"https:\/\/canbc.org\/blog\/wp-json\/wp\/v2\/media?parent=385"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/canbc.org\/blog\/wp-json\/wp\/v2\/categories?post=385"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/canbc.org\/blog\/wp-json\/wp\/v2\/tags?post=385"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
\n\u201cSick and Tired\u201d, The Golden Girls Episode 2: https:\/\/www.youtube.com\/watch?v=g1NxZakbm-M<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"